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Rush Children's Heart Center
www.rchc.rush.edu
Illustrated guide for parents and professionals on all aspects of pediatric cardiology. There is a tutorial for parents on heart anatomy, cardiologic terminology, medications, and a variety of diagnostic tests.
MedlinePlus Congential Heart Disease
www.nlm.nih.gov/medlineplus/congenitalheartdefects.html
Extensive resource on all aspects of CHD, with links to latest news, diagnosis, treatment, nutritioin, disease management, specific conditions, clinical trials, genetics, reference materials and organizations.
WWW Heart Info Links
www.chfpatients.com/links.htm
Extensive list of cardiovascular web links.
Children's Health Information Network - Congenital Heart Disease Information & Resources
tchin.org
An international organization that provides reliable information, support, and services to families of children with congenital and acquired heart disease, adults with CHD, and the professionals who work with them.
Pediheart Website
www.pediheart.org/parents/index.html
Parent site has excellent pictures and easy to read information about a normal hearts versus one with congenital defects.
CHD Online Handbook
http://my.execpc.com/~markc/congring.html
Gives detailed definitions for various Congenital Heart Diseases, plus information on medications and surgeries. Links to organizations with information on specific topics.
The Sudden Arrhythmia Death Syndromes Foundation
www.sads.org
The mission is to save and improve the lives of those who are genetically predisposed to cardiac arrhythmia's and sudden death.
PDHeart
http://tchin.org/support/pdheart.htm
PDHeart is a very active online support group and discussion forum for parents, family members and adults with congenital heart defects.
Yale Heart Book: Heart Disease In The Young
info.med.yale.edu/library/heartbk/20.pdf
This online medical textbook provides a vast amount of technical information on heart disease in the young.
The information furnished by the Childrens Virtual Hospital at Providence is of a general nature and is designed for educational purposes only. As each situation is unique, do not rely on this information for diagnosis and treatment. The Childrens Hospital at Providence recommends that you visit a qualified Health Care Professional for individual and personal attention.
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