Alliance of Genetic Support Groups
www.geneticalliance.org
The Alliance of Genetic Support Group is a nonprofit national coalition of consumers, professionals and genetic support groups to voice the common concerns of children, adults and families living with, and at risk for, genetic conditions.

Family Village
www.familyvillage.wisc.edu/index.htmlx
A global community of disability-related resources.

Exceptional Parent Magazine
http://www.eparent.com
A resource magazine dedicated to families with special needs children.

National Institutes of Health
www.nih.gov
The goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability, from the rarest genetic disorder to the common cold.

National Library of Medicine
www.nlm.nih.gov
World's largest medical library. Has an online catalog, databases, etc.

National Organization for Rare Diseases
www.rarediseases.org
National Organization of Rare Diseases offers database of rare conditions and resources.

MedicineNet
www.medicinenet.com
MedicineNet is a network offering health related information.

The National Information Center for Children and Youth with Disabilities (NICHCY)
www.nichcy.org
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.

The information furnished by the Childrens Virtual Hospital at Providence is of a general nature and is designed for educational purposes only. As each situation is unique, do not rely on this information for diagnosis and treatment. The Childrens Hospital at Providence recommends that you visit a qualified Health Care Professional for individual and personal attention.