Overview
The caregiver role is very important and a requirement for all patients treated in the outpatient setting. A stem cell transplant places significant stress and demands on patients and loved ones. Recent studies have shown the benefits of strong support systems to help the patient throughout the transplant process. Some patients have one designated caregiver throughout the transplant process, while some have caregiver responsibilities shared among family members or friends. It is important to consider in advance who would be able to be your caregiver(s) and discuss this with them.
Patients are sometimes away from home, friends and loved ones for long periods of time during treatment. It is often easy to forget that the caregiver is also away from all the familiar people and places that they depend on daily. For the well-being of everyone it is important to realize that the caregiver will need rest and time for relaxation, too. You should plan for time to allow your caregiver to relax and replenish his/her own strength.
To help you select caregivers and to help potential caregivers decide if they should accept this responsibility, a list of typical caregiver responsibilities follows. A caregiver does not need to know how to perform all of these responsibilities in agreeing to be a caregiver. He/she only needs to be willing to learn how to perform them, if necessary.
Typical Caregiver Responsibilities
Making arrangements:
Transportation
Financial
Appointments
Giving emotional support
Being physically present
Giving encouragement
Listening
Providing physical care:
Taking temperature, pulse and blood pressure
Giving injections
Monitoring food and fluid intake and output
Performing tasks such as CVC care
Recording medications taken/administered
Administering IV fluids and medications using a pump device
Identifying changes in patient's condition
Accessing medical care if needed
Reporting patient's symptoms to health care staff
Maintaining the home environment:
Cleaning
Meal planning
Grocery shopping
Preparing meals
Acquiring and maintaining medical supplies
Helping to keep a restful routine
Patient advocacy:
Gathering information
Helping with decision-making
Serving as a communication link with other family members and the transplant team
Treatment
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