Registries serve as databases for ongoing epidemiological research for patients with a specific disease or treatment.  Providence Brain and Spine Institute (PBSI) has several registries which are disease or treatment specific and provide help provide insight into:  

  • Population access to health services  
  • Treatment effectiveness and safety 
  • Quality of life and patient outcomes 

PBSI currently offers the following registries

Patients may sign up voluntarily with:

  • National African Americans with MS Registry  NAAMSR    
  • Pacific Northwest Multiple Sclerosis Registry  PNWMS Registry   

Patients are recruited and consented by a doctor: 

  • Anti-B Cell Therapy Registry – Led by Kyle Smoot, M.D. 
  • S1P Registry - Led by Kyle Smoot, M.D. 
  • Deep Brain Stimulation - Led by Seth Oliveria, M.D., Ph.D. 
  • ALS Natural History Study - Co-led by Nick Olney M.D. through NCRI at Mass General 
  • Moyamoya - Led by Vivek Deshmukh, M.D. 
  • First Seizure Clinic – Led by Matt Evans, M.D.  

Quality and/or Research; Patient data is collected; patients are not enrolled/consented 

  • Stroke Real Time Quality Patient Tracking 
  • Transitional Stroke Care 
  • Hemorrhagic Stroke Quality Patient Tracking 
  • Spine Care Continuum (Quality only)