Registries serve as databases for ongoing epidemiological research for patients with a specific disease or treatment. Providence Brain and Spine Institute (PBSI) has several registries which are disease or treatment specific and provide help provide insight into:
- Population access to health services
- Treatment effectiveness and safety
- Quality of life and patient outcomes
PBSI currently offers the following registries
Patients may sign up voluntarily with:
- National African Americans with MS Registry NAAMSR
- Pacific Northwest Multiple Sclerosis Registry PNWMS Registry
Patients are recruited and consented by a doctor:
- Anti-B Cell Therapy Registry – Led by Kyle Smoot, M.D.
- S1P Registry - Led by Kyle Smoot, M.D.
- Deep Brain Stimulation - Led by Seth Oliveria, M.D., Ph.D.
- ALS Natural History Study - Co-led by Nick Olney M.D. through NCRI at Mass General
- Moyamoya - Led by Vivek Deshmukh, M.D.
- First Seizure Clinic – Led by Matt Evans, M.D.
Quality and/or Research; Patient data is collected; patients are not enrolled/consented
- Stroke Real Time Quality Patient Tracking
- Transitional Stroke Care
- Hemorrhagic Stroke Quality Patient Tracking
- Spine Care Continuum (Quality only)